Physical therapy for Ehlers-Danlos Syndrome

Information originally from www.gillettechildrens.org

What is EDS?

Ehlers-Danlos Syndrome (EDS) refers to a group of 6 connective tissue disorders typically diagnosed in children but has also been diagnosed later in adulthood.

Connective tissues (skin, ligaments, tendons, and blood vessel walls) give structures in our body elasticity and strength to maintain integrity. When those structures are compromised, joints become unstable and hyper extend past normal range, making them more prone to injury.  This is the case in the most common type of EDS, Hypermobility Syndrome.

Common Signs & Symptoms of EDS

• Loose, overly flexible joints
• Hypermobility in toes, hands and fingers
• Abnormal scar formation or wounds that don’t easily heal
• Flatfoot
• Muscle weakness and pain
• Joint pain and/or early arthritis
• Fatty lumps at pressure points (knees & elbows)
• Heart valve issues
• Hernias
• Abnormally stretchy, fragile skin that easily bruises

How physical therapy can help:

With hypermobility being a predisposition to injury, physical therapy takes a safe approach to strengthen around affected joints. Surrounding a joint with strong muscles, and strengthening the joint itself, creates more stability and helps prevent dislocations. Education on proper mechanics for everyday activities is also provided to make sure our patients aren’t sidelined due to avoidable bad habits.

If you or your child have been diagnosed with EDS, the physical therapists at Camelback Sports Therapy can provide you with the tools to prevent injury and Stay in the Game. Call +1 (602) 808-8989 to schedule a free injury assessment to discuss treatment options.

 “I am now more aware of my body, I know when to do soft knees and elbows.  I’m a lot stronger because I’ve been doing exercises and strengthening my core.  I know that I have to make my muscles really strong so that I don’t hurt myself more because of EDS.  My exercises that Lauren taught me will help with all of that.” – E.H.

Tags: dislocation, EDS, Ehlers-Danlos Syndrome, Hypermobility, joint instability, pediatric